luvslulu's Discussions
Re: Rolfing....anyone experience this???
Replied Jul. 15, 2008
Re: Rolfing....anyone experience this???
Replied Jul. 15, 2008
Re: Rolfing....anyone experience this???
Replied Jul. 15, 2008
luvslulu's Page
Latest Activity
I actually made me up some business cards that have my name.. my web sites (including this),and
in big letters.. "Dystonia Awareness is My Business"... this is how they look and if anyone asks me anything realated to my disability or work, I give ...
Re: the member who has Blepharospasm and cant get insurance approval for it. I find this totally unacceptable! I think his Dr's have to step up to the plate BIG TIME and help him get the correct authorization. This is INSANE.. which is not new to ...
Hi all! Thank you all, for your input on Lyrica! I have decided NOT to start a regime of this drug at this time. I have heard good things..and the bad,and seeing as my body is so sensitive to any new drug,I think it is in my best interests not to ...
I agree with you,Rosemary! They have not only NOT caught up with the stats but I personally think, they let some of them "slide" thinking they will hurt sales, or are UNIMPORTANT.. Iam not fond of pharmacuticals as you can see.. and to me.. this i...
Getting a massage is something to really think about. I have had a few with no relief but I cannot say it was from someone who was really experienced in doing it correctly. Something i will think about. .Yes this drug thing is a journey.. much to ...
Thanks Rosemary!
I will take your advice into consideration,too! Interesitng about the glucose tolerance...and a bit scary,ESP CONSIDERING YOUR HEALTH/ BODY HISTORY. Also interesting is that I once took Cymbalta for about a month and had no good ...
Comment Wall (30 comments)
- At 12:21am on December 21, 2008,
TWISTEDJAM said… - Hello Luvslulu !
What a wonderful place to be ( your site )
so very peaceful and serene !
I hope all is well with you !
I haven't been on here for quite some time !
However I would like to wish you a Very Joyous Christmas ...
and blessings to you and yours !
Take good care !
Your friend
Grace
- At 12:51pm on July 30, 2008,
Robin Wood said… - Sey Luvslulu :)
I was wondering if You could go to the discussion "Succesful Treatment of Dystonic Tremor/Writer's Cramp?" and the other writers cramp discussion currently going and tell everyone the name of your famous pen. I don't why I always forget the name of it when it gives me so much relief. I hope you are doing well and enjoying your time with the gkids :)
Lots of love and hugs too
Lil' One
- At 12:33pm on July 27, 2008,
Libertysnanners said… - Thank you. Times have changed since I was first diagnosed in 97. It was hard for me to reach out for support when in the beginning I was turned away and I went years not understanding why my body jerked involuntarily, contorted, had so much pain, and felt alone.Thank you for pointing me to this sight. I recently returned to work, I am controlling my pain and contortion and spasms with rolfing but here recently started going to chiropractor with same results, still have pain but it is nerve pain mainly I found if I can find the muscle that is spasming and causing the nerve to be pinched and relax that muscle the nerve pain lessons up.
I am slowly figuring out how maneuver on this sight. It took me while to figure out myspace and facebook.
- At 12:04pm on July 15, 2008,
Ray said… - I must admit I have no idea what this friend page thing is or how it works. I see you are in AZ, we use to live in Phoenix in the early 80's, now we are in Visalia Cal.
I have been active on the NSTA board for the past couple of years.........and got to know Beka a few months past and helped her put together the radio PSA campaign with Alice Cooper.......
Ray
- At 10:43pm on July 13, 2008,
karen said… - well after driving myself..my daughter and her boyfriend crazy all day the best i could do is get a border done using an image from my computer..i read your posts to robin about how you did it and printed them off so i could follow them..i think my problem was not having an image that was big enough..i think..i googled myself crossed eyed looking for one about the size that you recommended..oh well..it will do for now..i'm off to give my brain a break!!..hope all is well in your world my friend!!..take care and have a great monday!!
- At 4:11pm on July 13, 2008,
Robin Wood said…
- I love Your quote at the beginning. We Rock !!! Course it's gonna take me forever to get everything lined up. I'm gonna do my slogan "Leave No Dystonian Behind" in my top banner when I get around to it that is, ha ha I like the way You added "Make It Our Mission" to it, boy we make a good team, course we always have too :)
Luv You !!!
- At 1:25pm on July 13, 2008,
Robin Wood said…
- oh I forgot the pic
- At 1:24pm on July 13, 2008,
Robin Wood said…
- Ok I went in and resized it but I didn't like it that way. The larger version gives me more open water in which to place pics in, I kinda like them there, it's a cool effect there's a peace and serenity there with them surrounded by the water.
I also went in and found the code so it would tile like Yours and placed it in the box under the advance settings. did the same thing with the transpartency on the pics.
Here's the actual pic, omg it's huge like 2500 x 1500, there's so much more to the pic so maybe I'll place it somewhere there or write a blog about it.
I am having to build my page from the top down so I can place the pics and writing in the water, except for the poem up top, I like that in the mtns. It keeps changing on me tho when I go in and edit again.
K thanks for Your help. hope You are well today :)
- At 12:43pm on July 13, 2008,
Robin Wood said…
- Sey, what size is your background pic ? ... can't get mine to look right without it being tiled so I've got another plan.
- At 6:58am on July 13, 2008,
Robin Wood said…
- Nana P, Your so cool and so if Your page :) Open another window in internet explorer.
Great Job !!! I couldn't get mine to tile, probably to big, so was thinking of figureing out how to make the background fixed to where it doesn't move when You scroll.
Luv luv Luv to You Luvslulu (:
Profile Information
- Location
- 85013
- More about me (my health interests and reasons for joining WEGO Health)
"May God give you... For every storm a rainbow... for every tear a smile... for every care a promise... and a blessing in each trial. For every problem life sends... a faithful friend to share...
for every sigh a sweet song...
and an answer for each prayer.”
Lets see. Where do I begin. I was raised in Milwaukee, Wisconsin and moved to Arizona in 1968. I was diagnosed with Cervical-Cranial-Dystonia in 1990. It affects my neck,shoulders, face(including jaw and tongue and speech).I also have some difficulty writing and doing any "repetitive" projects but I try and perservere, and do sewing when I can. I have a twin brother who has MS, but has been in remission for 20 years. He has come along way. I am divorced, but have a great relationship with a guy who understands my disability the best he can and is very understanding. (God Bless you,Joe!) I have one daughter and three FABULOUS grand children who all live in PA... with the exception of the oldest grandson who goes to college in Chadron NE. (who happens to be spending the summer with me here in Arizona and mannn..am I ever lovin' it! )My handsome grandson,Tony! (I'm sure gonna miss him when he goes back to college!) 
Here is a image of my border collie, Mercedes, who I had to put down a few years back. The power of a dog.. it has no ending! She will be with me forever!
Miss you,My Mer!
My fabulous daughter with me and her two youngest beauties, Mandy andJessy. 
Any questions, feel free to ask! I love this new-found site, and hope to get alot of information flowing thru here! As the saying goes.. KNOWLEDGE is POWER, and both lead to a better understanding and a better quality of life for all of us!
Me and my Joe!
© 2009 Created by Marie
