dear elaine -i hope it works for you.my home heath team wrote a strong letter and we got no where.im still wondering if a functioal mri would help with diagnosis and treatment-marie
dear beka-this is something ive dealt with for a while.my family is trained in assisted cough which is taking the palm of assist peson above the belly button and you tak a breath and the helper shoves in and up as you cough.i drink ice water thu a...
dear beka-did you read my post on this subject.i havent had responses and i stopped getting notices when people post on wego.what are your thoughts on the functioal mri and dx and rx.id love to hear your take on it.thankyou marie
dear rebecka-o.t.but soc.sec. might have to pay.i would like to revisit the idea of whether us mystery folks shoud be getting a functional mri and if the test shows an anomoly,why woould it be psychiatric depending on where the abnormal activity i...
dear elaine and beka and all-i m in the same frustrating position and i feel if i had a knowlegable neurologist on board i would have better management.i read the article in the dystonia magazine where a man was labled psychogenic and he had a fun...
elaine-i want to be there for you too.for some reason istopped getting any notices about posts so i got on and ive missed alot.im like you elaine in that the best way to manage my movements.even talking and laughing sets them off.its frustrating b...
dear rosemary-thats where i need to count my blessings.even though im homebound,require help with most my adls,depleted all our resources since i had to retire and must private pay all homecare because its custodial...my husband has been supportiv...
More about me (my health interests and reasons for joining WEGO Health)
had dx ms tremors myoclonusfor25 years.thentremors became more complex inc laryngeal and respitory spasms and spech probs.have had 4 neg mri of head.dr confused so since i had hx of ptsd rx in past that i had rx for i was branded psychogenic by drs but psych,ot,pt,speech and resp said no ive been branded
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Hello Marie:
Welcome to wego health. This is a place to share and get your questions answered. I have CD with tremors so I can relate to tremors. I hope you will find the answeres you need here. I am so glad you found this group.
Sis