rachelbates's Page
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- Location
- RM14 2NS
- More about me (my health interests and reasons for joining WEGO Health)
- I'm 28, live in Essex in England and married since august 2007. Unable to work full-time for 7 years due to having bad Chronic Fatigue Syndrome, recently diagnosed with Cervical Dystonia. Very frustrated, a bit depressed. Hoping to start a family.
© 2009 Created by Marie
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Honestly I can't imagine why your doctor would be discouraging you to not start a family. I do know people who have gone off meds to start a family and even people who just choose not to take any and just live with the CD. I don't know which meds would interfere with pregnancy, but that's something to check with your doctor and the pharmacy. But it's certainly worth taking the break from those that might have a warning to not use during pregnancy, and its a small price to pay for being able to start your family. I'd suggest you also go onto care4dystonia.org and there is a WEGO dystonia board which you can post your question and see if there are people on the board that that have had babies with CD. You can go to www.community.wegohealth.com/group/dystonia. As for any other questions you might have regarding dystonia, I'm your girl. I've been a patient advocate for nearly 20 years and can help especially with education and support. If you'd like you can also email me at nmuller406@aol.com.