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sidious
  • kodagu,karnataka
  • India
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is there a cure for dystonia?

Replied Jun 12

is there a cure for dystonia?
3 Replies

Started this discussion. Last reply by Bud Jun 15.

 

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Bud replied to sidious's discussion 'is there a cure for dystonia?'
I wrote a blog on the groups forum 2 hrs ago. take a look. It is titled cure for dystonia that noone talks about. I have been trying to help my wife find a cure, not just meds. Maybe there is some hope on the link I provided. Be well.
June 15
sidious replied to beka's discussion 'What is it that Persons with Dystonia truly WANT ? Is a Cure being held back ???' in the group Dystonia Neuro Movement Disorder
i know it may sound harsh,but i' have been taking drugs for 9 years.doctors are of no use,they tell me i have to take them for the rest of my life.it scares me.
June 12
sidious joined Adrienne's group
Dystonia Neuro Movement Disorder
This group is moderated and hosted by Beka Serdans, RN, MS, NP, founder of Care4Dystonia.org.
June 12
sidious replied to sidious's discussion 'is there a cure for dystonia?'
my life has been ruined by this mutation.because of this i'm afraid of my future
June 12
webdudey replied to sidious's discussion 'is there a cure for dystonia?'
I think it's an electrolyte imbalance. Look here: http://www.healthtoheart.com/electrolytes-electrolyte-imbalance.htm This cured me of it...it's so simple but it makes so much sense. I never had a doctor tell me to balance my electrolytes..what a d…
May 30
Rich M replied to sidious's discussion 'is there a cure for dystonia?'
I wish there was a cure.If not a cure, at least a treatment,of some sort that will aid the many different kinds of this condition
May 27
Vanessa_Rhinesmith left a comment for sidious
May 26
sidious added a discussion
is there a cure for dystonia?
it has been 9 years since i was diagnosed with dystonia.i have to depend on drugs everyday.is there a cure for this mutation?
May 20
sidious is now a member of WEGO Health
Welcome Them!
May 20

Profile Information

In the online health communities I participate in, I'm:
not really sure where I fit yet
This site is:
my personal website
Another place where I contribute is:
http://www.facebook.com
Which is:
my profile on another website
More about me (my health interests and reasons for joining WEGO Health)
dystonia mutation and cure

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At 12:32pm on May 26, 2009, Vanessa_Rhinesmith said…
Welcome to WEGO Health, sidious!

I am so sorry for your struggle. We have an amazing Dystonia community that I'd encourage you to join. They are an inspiring and inspirational group.

We also have a great assortment of other groups to fit any interest. I welcome you to check them out!

Please let me know if you have any questions about how to get started - or if you can't quite find what you're looking for.

Be well,
Vanessa
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