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NATURE TOO CAN HAVE DYSTONIC REACTIONS......"LOOK DEEP INTO NATURE THEN YOU WILL UNDERSTAND EVERYTHING BETTER"...Albert Einstein
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Thanks so very much Beka for your heartfelt concern.
Many storms rage in this world but the worst storm of all is when one is loosing a parent,
a mother.
You are right about not focusing on the timeline that my mom has left but focusing on being ...
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- I AM A 50 YEAR OLD WOMAN.
I HAVE CERVICAL DYSTONIA ALONG WITH FIVE DEGENERATED DISCS.
I WAS DIAGNOSED IN 2007.
I HAD NO CONCEPTION OF WHAT DYSTONIA WAS.
NEVER HEARD OF IT.
UNITL 2007.
TWISTEDJAM's Videos
TWISTEDJAM's Blog
KEEP THE LIGHT ON DYSTONIA - SHARE - COME TOGETHER
Posted on August 29, 2009 at 1:30pm — 1 Comment
WARRIORS IN A "TWISTED" TREE - BRANCHING OUT IN HOPE OF A CURE FOR DYSTONIA
Posted on April 19, 2009 at 4:30pm — 1 Comment
Comment Wall (35 comments)
- At 4:48pm on December 1, 2009,
beka said…
- BE PROUD THAT YOU ARE YOUR MOTHERS DAUGHTER....
beka
Hugs..
- At 3:06pm on November 28, 2009,
beka said…
- Hi grace - Is this the first time you have had such intense pain after the Botox ? I would talk to your neurologist about dosing and checking for antibodies to the toxin.. dystonia tends to migrate from muscle to musce especially if you have ST.. and thetre are more than 37 pairs of muscles in and around the neck. Have ice packs 20 min ON, 20 min off helped ?
Do let us know how your mother is...
beka
Thinking of you...
Great video maker...next film producer here !
- At 9:25am on October 6, 2009,
Cheryl Sunshine Benson said… - thank u, i jsut update the about me section of my page, i had forgotten to put any on this site, as you will see dysotnia is one of many illnesses and other things I have been left to deal with.
Very grateful for add
namaste
cheryl
- At 7:35pm on September 6, 2009,
sisdailey said… - Hello Grace:
It was heart breaking to hear the news about your mom. Losing her will be very hard for you although you know it is going to happen. It doesn't make it any easier. I agree with you about God talking through other people. I do hope during this time you've become closer to her if she let you. If not you've got time on your side. Do what ever it takes so you will not have any regrets.
Grace this reminds me of Lean's poem she posted "TIME" I hope you read it I loved it so much that I copied it and have it on hand to read at times. Especially the part under the bible verse Eccl 3.
Grace hold on to your strength and your faith in God. He will get you through this. Please let me know how you are doing. I love you and feel your pain.
God Bless! Sisdailey@bellsouth.net
- At 3:18pm on June 5, 2009,
karen said… - hi grace..as i have been doing some reading of the posts..pretty much reading only as the "big D" knocked me out just as the reception started..so i am pretty much limited in what i can do..atleast my hands will work for a little while before they start doing the "curl up and twist" dance..found out that typing with your knuckles is a little painful and our knuckles weren't made to hit tiny letters on a keyboard!!
the reason i'm writing is that while i have been reading i discovered that we haven't offically become friends!!..so can we be friends miss gracce?..pretty please??..i'll be your friend if you'll be mine!! ;0)
- At 2:13pm on May 3, 2009,
Jeanie said… - Crace, extreme presentation, well done on it all. 'Cought In A Crip' shows the world how it feels and for me its all the time. Lets hope it gets the worlds attention and they want to make a poster out of it, I still have hope and dreams. Jeanie
- At 4:19pm on April 19, 2009,
Deanna said… - That would be a honor...Thanks!
Deanna
- At 10:48am on April 19, 2009,
Jeanie said…
- Absotootly add my pic. It does help to put a face and personality to this devastating dystonia.Grace you have an incredible blog,The pictures enable others to see what we feel like inside.Sometimes words & desriptions are not enough.A "come look and see" leaves a definate impression. Jeanie
- At 1:42am on April 12, 2009,
TENA/DIAMOND said… - WHAT A REMARKABLE WEBSITE YOU MADE HERE. I HAVE JUST STARTED TO LEARN ABOUT THIS DISEASE AND YOU HAVE IT ALL IN THIS PAGE. THE PIC OF YOU AT THE END IS AWESOME. GREAT. GOD BLESS!
TENA/DIAMOND
- At 11:07pm on March 15, 2009,
Lene said… - Hi...that's fine. I was not doing much. I was hunted down by a couple of friends so I did it. How do you deactivate?. I would like to also. Lene
e-mail me at eileendonahue@comcast.net
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