All Blog Posts Tagged 'health activists' (9)

As Health Activists, we sift through an array of health information from medical reports and news articles to message boards and tweets. And, personally, as I research more about a disease or health condition, sometimes it takes a personal account or opinion-piece to really communicate the weight of the condition to me. This concept of coming to understanding via someone's personal story made me think about the way we define specific health conditions and disease and what goes into creating a… Continue

While doing some research yesterday, I came across some new Health Activists I'd like to introduce you to. … Continue

Launched this summer, the 23andMe Research Revolution is a contest to see which disorder/disease will be the next the genetics company will study..... and Migraine is leading the pack!

The 23andMe… Continue

I recently came across Sara Nash's… Continue

I recently spoke with Leslea Harmon, founder of Allergy W… Continue

This week, I'll be speaking with Leslea about life as an allergy mom and her site AllergyWare. If you're not familiar with her site, you should absolutely check it out. Tons of amazing resources for people living with food allergies. We'll be publishing the interview as a podcast here on WEGO Health, so I'd love to make this a community effort and get your input! If you have any questions you'd like to ask Leslea, please leave them in the comme… Continue

As some of you might know, today is Data Privacy Day here in North America. Reading this post over at TechCrunch brought to mind all of the issues involving online health communities and privacy. As Janeen mentioned in her excellent post, "… Continue

In late December and early January, WEGO Health hosted a series of HIV Insight Groups on behalf of one of our sponsors. We had over thirty HIV patients, caregivers and researchers join us and share their experiences and expertise as members of the online HIV community. Thanks to the time and participation of these Health Activists, WEGO Health was able to donate over $800 to amfAR, The Foundation for AIDS Research. amfAR is committed to furthering research in… Continue

We had a great session on Wednesday night with some of the Health Activists in the Alzheimer's disease community. We talked a lot about what new features WEGO Health should be focusing on to better support the caregiver community. Participants want us to bring together caregivers, patients, doctors, folks who run facilities (both hospitals and long-term care units), and pharmaceutical companies doing drug research. What impressed me most was the col… Continue