Beka's Blog (7)

Rcommended Reading :For Anyone with a Chronic Disorder- Pain, Depression, Dystonia, etc.

Recently I have sent out an immense number of coupons for the book I'm Moving Two. The second book is called I'm Moving On... Are U ? , which takes you on a journey from Arce's office, potential denervation, choices, Myobloc treatments and immunity, climbing the mountainous regions of the turkish Rivera, the uncanny caves of Malta, paved bike German streets in Muenster, ICU work with a movement disorder, and eventual treatment failure with medications; closing out with thoughts about DBS. I do n… Continue

Added by beka on May 13, 2009 at 2:23am — No Comments

Freedom from Chronic Disease ? Try Butterfies !

May these Words be inspirational to All ; Butterfly Girl” by Jaylene Johnson: “Do you only remember the way you used to be Full of fear and doubt and insecurity Taking things that people said to build a web around you Thinking you’d be safe in that place I know you’re frightened and your wings are frail But summer’s here and you’ve outgrown your silky veil The walls of your cocoon have left no room for breathing So break free Break free Butterfly Girl Don’t you know you’re beautiful by… Continue

Added by beka on May 6, 2009 at 6:47pm — No Comments

How to be an RN with a Movement Disorder ? PART 1

I get this question asked almost constantly when I am a work in the ICU. First, a bit of basic information about me. I truly never wanted to be a nurse,but due to the convincing powers of my father; I landed in Nursing school right out of high school. Art school was something that I had strived for while dodging high school biology and physics courses. But, my father would not have "one of his 3 girls demoted to the status of a starving artist". That status would belong to my youngest sister aft… Continue

Added by beka on May 6, 2009 at 12:30am — 1 Comment

Dystonia Awareness, theorists, no bias...

Wow, am I surprised at the amount of emails I have gotten from reporters, nursing magazines, and others who all deal with publicity...They all heard about my being a recipient of the New York Times Award for Nurses. One of the winners I just realized was one of the nursing theorists I read about during my graduate level work. Her husband is a judge. She sat right next to me. I should have asked her more about her theory of "human becoming ". Parse is her name. I never understood nursing theory w… Continue

Added by beka on December 17, 2008 at 8:09pm — 1 Comment

The Tribute to Nurses Awards features Dystonia- NYTimes Magazine

Dec 2nd 2008 Well, after coming home from the Gala yesterday I ended up sleeping most of the day...the TV was on at 1141 PM..not sure how it came to be on...but the Gala began at 830 am..it was a breakfast Gala...within the NY Times building... really massive..and modern looking.. planted Birch trees in the center of the atrium.. but they all looked like they will not survive the winter or the cold...they were craned into the building..showed up early as one never knows about the traffic and its… Continue

Added by beka on December 3, 2008 at 10:28am — 2 Comments

September:Dystonia Awareness Month

How aware are you of this rare neurological disorder ? Are you or a family member at risk for developing it ? Take our " Are You At Risk ? " quiz at http://www.youtube.com/watch?v=auTIZnbVJSY. Let us know about your events during September that brings attention to this rare , but common disorder. More common than you think ! Beka Moderator Dystonia Forum Continue

Added by beka on September 8, 2008 at 5:02pm — No Comments

Is the Nursing Shortage affecting your Care ?

As a actively practicing nurse, I am wondering if the current nursing shortage is affecting the care you receive from your doctor, within the hospital system, clinics etc. By 2010, most of us who are over the age of 45 will be seeking retirement and leaving the field. Experts assume that we will encounter a crisis or loss of over 250k nurses by 2010. No an easy number to swallow. Working in ICU has not become easier; families crowd the waiting rooms, all waiting for optimal results from test res… Continue

Added by beka on August 14, 2008 at 5:18pm — 1 Comment

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