After about six months of taking meds and adding more to the mix to try and control my spams I decided to go to another Neurologist to see if another set of eyes might see things differently or have different views on the medication I am on so here is my tale to tell :-)
I go to the office I was referred to by a trusted co-worker who said the doctor had excellent "bedside\listening" manner. Apparently the office had tried to get in touch with me (no, I do not answer my cell when I do not recogn…
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Added by lissamel on July 30, 2009 at 11:30pm —
2 Comments
this precious, precious thing
how light it is
how heavy it can be
this precious, precious thing
how dark it is
how hard it can be
this precious, precious thing
how forgiving it is
how horrible it can be
this precious, precious thing
how joyful it is
how dreadful it can be
this precious, precious thing
how beautiful it is
how ugly it can be
this precious, precious thing
you wounder what it might be
for it is life
life of our world
the animals
the plants
the people
cannot have beauty withou…
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Added by lissamel on June 30, 2009 at 9:34pm —
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where have i gone
i look around
trying to see
where have i gone
for all i see
is a mother and a wife
where have i gone
i cannot see
i know i have lost something vital
like an organ that is important
oh, my heart, my soul, my name
how do i find it again
this important piece of myself
that has long been gone these past few years
looking hard
looking deep
i think i see a glimmer
or a shadow
of what i seek
hope is on the horizon
no matter how the journey
is long and steep
hope is in the stars…
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Added by lissamel on June 30, 2009 at 9:21pm —
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where are my dreams when i need them most
and not just the dreams we see in our heads
in the dark of night
my dreams have become shattered, broken
my life seeming to be torn apart
a few years ago life set a blow
that began to tear at the fabric of my soul
like a bird
caught in a cage
beneath a shroud
forced to be quiet
forced to be subdued
i see the hole in front of me
been their before
quite a few times
they say knowledge brings power
perhaps this knowledge will be my weapon
to never let go…
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Added by lissamel on June 30, 2009 at 8:46pm —
1 Comment
stuck in a loop
not caring
house is a mess
late to work
children breaking the rules
dont care
not caring feels bad
where has the light gone
gotta get up
dont care
gotta get moving
find a reason
to care about the world
find a reason
to find the light
from a world that has grown dark
gotta learn to care again
learn to accept
learn to give up the bad
to see the good
gotta learn to find the will
to fight for what is within
to see the potential
of what can become
gotta learn
gotta see
gotta ca…
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Added by lissamel on June 30, 2009 at 12:00pm —
2 Comments
It has not been a very good day today with the only highlight being my flex day and only having to be at work for half a day. We had a big thunderstorm here, with more expected tomorrow, and this seems to act like a lightening bolt straight to my muscles.
For the longest time, prior to diagnosis, I dealt the the muscle spams in my neck and back thinking it was just because of being overweight. Yet since the official diagnosis things started moving about and acting up in my face and upper body.…
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Added by lissamel on April 27, 2009 at 9:20pm —
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I finally got in to see the Pain Management doc my neuro referred me to for botox - only to be told he refuses to do injections for CD until his patients have gone through physical therapy for stretching the neck muscles. Then if relief is not experience he will do botox. Does that sound familiar to anyone or was he trying to lead me on a wild goose hunt? How can turning my neck various ways on purposes help CD?
He also gave me some sort of spray I can use on my face and neck to help numb the s…
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Added by lissamel on March 18, 2009 at 11:55pm —
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I am 35 years young, and have just been diagnosed with dystonia two weeks ago, focused in the neck and head.
As I read more about the disease I find more questions to bring to my brain doctor a week from now, as I believe I have more symptoms than what was evident during our appointment (facial muscles moving all over the place, ticks and head going to the left).
I believe it all starts back to a car accident, where I was in the backseat without a seat belt (supposed to be safe in the back - r…
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Added by lissamel on February 3, 2009 at 12:55am —
3 Comments
