Stephanie's Blog (8)

I came across this article from Health Affairs by geriatrician Jerald Winakur. In the article Winakur, "looks at the "vast inland sea of elders" that is building and wonders where the doctors will come from to care for… Continue

I came across the story of Herbie Winokur and his courageous family while searching The New York Times website for information on Alzheimer's. According to The New York Times article, "in 2004, filmmaker Julie Winokur and photojournalist Ed Kashi uprooted their two children and their business from San Francisco and moved to Montclair, N.J., in order to care for Ms. Winokur’s father, Herbie Winokur, who was suffering from Alzheimer’s disease." The NY Times published two arti… Continue

Many of you may know who Arlene Francis is, but if you don't please check out her web page. Arlene was an actress, artist, radio personality, and a person with Alzheimer's. Please check out her website, it contains information about her life in the media, and the story of her Alzheimer's. While Arlene was living with Alzheimer's she participated in the Artworks Program, "an Artists-In-Resi… Continue

Just wanted to share this book with all of you, thought it might be of some use for Alzheimer's caregivers. It's titled "Communicating for Care: How to Form a Successful Team with the Alzheimer''s Patient, Caregiver and Doctor'' by Gordon Rafool,MD. Here's the description from Amazon.com: "'Communicating for Care' is a book written to… Continue

After spending some time now researching Alzheimer's and visiting sites dedicated to people suffering from AD and their caregivers, it has become more obvious to me that one of the principal ways that people with AD are coping is through blogging. There are many excellent blogs by people with AD including Chip Gerber who I posted a blog on… Continue

While doing some research on early onset Alzheimer's I came across a site that I found interesting. It is the online diary of Chip Gerber, a social worker who was diagnosed with early onset AD in 1997 at the age of 50. Chip started his online diary in July of 2000, on his site he discusses many of the issues he faces on a daily basis, such as answering the phone and turning the volume down on the stereo. I was touched by many of his… Continue

I stumbled across a new way to search the internet while visiting the Fisher Center for Alzheimer's Research Foundation site, one of the largest Alzheimer's research teams in the world. There is a search engine called GoodSearch. It works just as well as Google, but each time you use GoodSearch you are giving money to a charity. If you go onto the site and select the Fisher Center for Alzheimer's Rese… Continue

I came across this video while researching Alzheimer's related topics on The New York Times website. I was moved by the courage of Fritzie Hess, a woman who lost her father to Alzheimer's and who is providing care to her sister who is also suffering from the disease. She is working with researchers in Pittsburgh, allowing scientists to study her brain, in hopes that her contributions will aid rese… Continue