Juggeling work, school and dystonia.
I was accepted into an online master's degree program for Family Nurse Practitioner. I start at the end of August and I am terrified. I work 4, 12 hour shifts every 2 weeks in an extremely busy Labor and delivery unit. It is very stressful. I feel the spasms in my neck at the end of the day. Some days I just want to cry. My job is my love but I know I can't continue at this pace. It hurts too much. In 06 I had peripheral denervation surgery in Jacksonville Florida by Dr Carlos Arce. Even though he is a brilliant surgeon, my surgery was probably 25 percent successful. The other problem I have with treatments is Botox. I did not build antibodies because they tested it on my face. Wow, that was an experience. I couldn't figure out why people would want to lose the ability to express feelings with facial movements. Anyway, back to what I was talking about. Botox does not work for me at all. My neurologist used double the dose of myobloc and I had no results not even side effects. Whats up with that. So back to my dilemma. I start school and will have to adjust to my new life. I won't get to sleep as much and that I will miss. Dystonia just takes so much out of me. If anyone reads my blog thank you for letting me vent.
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Comment by scotsirishrn on August 13, 2009 at 8:37pm -
No I don't live in Jax. I live in town called Vacaville in California. Dr Arce was one of 2 MD's in the country that did the surgery I had. I had to stay there for a week before flying home. That was a nightmare flight as you can imagine. I have cervical dystonia with possible brachial dystonia. The reason I say probable is because my Neuro thinks it is just carpal tunnel. However, when I saw Dr Arce and he did his exam prior to surgery he felt I was developing brachial dystonia too. He didn't feel confident the surgery would work but I went for it anyway. The man was very smart. I wish I was in Jax to meet you. It is always good to have support. Thank you
Debbie
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Comment by Deanna on August 13, 2009 at 4:42pm -
Hello!
Wow, alot of stuff on your plate.The spasms in the neck are awful so I really understand. I would rathter have them anywhere but in my neck.Are you in Jax? I live on the Westside of town. I had been going to Mayo, but got nowhere with them. I am at Shands downtown with Dr Huang. Oh and there's a group that meets here in town too.
What kind of Dystonia do you have? I have Generalized, head to toe.
You are not alone.
Deanna
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