Caring for anyone with a chronic condition can be difficult, stressful and make you feel very alone. Having a group of others in your life that understand exactly what you are experiencing can really help. No, you aren't the one who has to live the condition, but caring for a child, spouse, friend, or senior with a chronic condition can take it's toll on the caregiver too. Caregivers usually put their own needs on the back burner because they are so busy taking care of everyone else. A support system is a great way of giving yourself a little TLC too. My son (age 5) has asthma, and luckily for him it is under control for the most part. He does have significant flairs when he's ill. When his asthma is not controlled, I am his primary caregiver. Making sure that my son can breathe properly can become very stressful. If I drop the ball and don't fulfill my duties, there can be major repercussions. Whether or not it's truly my fault, I will blame myself for any trips to the ER. So how to you find a support system where others will know exactly what you are going through and may also be able to lend real life expertise along with a should to lean on? The Everday Health article
Building Your Own Asthma Caregiver Support System has some fantastic suggestions. Many of these I do and they work.
- Talk to your loved one’s doctor and nurse. They can give the medical basics of caregiving, but also point you to any support groups in your area.
- Check your paper’s community events listings.
- Contact the local or state chapter of a national asthma association.
- Go online. Pressed for time? Can't leave the patient you are caring for? There are many on line support groups that you can join. I am a member of several and the information and support that I have gotten from these wonderful groups of people have been invaluable.
- Create a blog. I started my blog as a "mommy blog", documenting all the cute and not so cute things that my children did every day. Then my youngest was having a terrible time with his asthma and I started blogging about it. People started to find my blog through those posts and they left me encouraging comments and pointed me to information that I might not have found otherwise. People also thanked me for blogging our experience. It let them know that other people were going through the same difficult situations that they were.
Where can you find some on line support groups?
This page from About.com: Asthma has several links to point you in a starting direction.
My post is about Asthma because Asthma, Allergies and Food Allergies affect our family. But anyone who is a caregiver of any chronic condition or disability can use the information and tips here. The CDC has a great page to help all caregivers. It also gives a few tips on how to be an advocate for your loved one and how to take care of yourself. The tips found in those sections are great and should be used by all caregivers. Also check out National Family Caregiver Assocition to connect with other caregivers and get more information about caregiving.
If you are an asthma caregiver, where do you go for support? Do you find more support on line or in real life? What is the number one tip you would give a newly appointed asthma caregiver?
Please share these tips and this topic with your community. The more we support each other the better Health Activists and Caregivers we can be.
Visit the WEGO Health Asthma and Allergy Community to share your tips and to keep this conversation going. While there, why not start a conversation of your own?
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