Day To Day

I was never the one to just let things go and never worry, i am a constant worrier. About 4 years ago as i was getting ready for work i was putting on my eye brow liner with my right hand and it would not sit still. I let it go for a a few days thinking it would go away but it di not. I mentioned it to my husband and he said well you know we are all getting older, not me i thought there was more to it. The next time i went to the RHEAMATOLOGIST she looked at the twitch in the last two fingers and she suggested going to a Movement doctor. I did and of course i got every answer from essenstal tremor to stress to see a shrink to i do not know. I went from one dr to another and the same thing, till i found a very caring and understanding(WOMAN DR) that delt with PK AND MS. I ask what she thought and the first honest answer i had recieved was ( YOU HAVE SO MANY DIFFERENT THINGS GOING ON I WOULD GO TO THE MAYO CLINIC)so off we went. I spent 5 long days to get the answer Dystonia.But it was still not over, there is not much know about Dystonia even by the Dr. AND every one has different symptoms, and most mimick PD. All i know is i kept searching till i found some kind of relief. I have Dopa responsive DYSTONIA and i take Sinemet 25/100 3xday and Klonapin for the jerking 3xday and it has helped but i still have good days and bad days. I still have to pace myself way down from before, i still take naps , and i have learned to ask for help. I know if i miss just one dose what pain i will be in, and that happens, because of my memory. My family has not really adjusted to the change and they probably never will, they help but it is me that has to do the mental work.THis is a good day so far but i know with each post it will change, I Hope this helps someone understand, we are still the same people we just have to work harder.

shuffles