WEGO Health

I'm new to the WEGO Health community, but not new to life as an advocate for my health. I've been living with type 1 diabetes since I was a little kid, and throughout my childhood, I didn't have a lot of exposure to other kids who had diabetes. As an adult, the pool of other PWD (people with diabetes) became even shallower, which is what brought me to the internet in the first place. I wanted to connect with other people who understood my health condition, and I wanted to help spread awareness, accurate information, and understanding to the people in my community.

Diabetes isn't the only condition that's talked about on WEGO Health - there are all kinds of people here, living with all kinds of health conditions. I've spent a few weeks poking around here, checking out the different groups and members, working with the WEGO Health admin team, and trying to gain a more global understanding of what other health advocates are doing … and seeking.

To that end, I've been brainstorming about the different kinds of webinars, etc. that we, as health advocates, would like to see presented here. I'd really love to hear from you guys. What topics would you want to see covered? What kinds of experts would you like to see interviewed/presenting? What's the one thing you came here hoping to find, and how can we help you find it?

All of your feedback is crucial in keeping our community growing and learning from one another, and increasing our personal and collective advocacy efforts. So please, don't be shy!

Views: 1

Comment by Alicia C. Staley on March 1, 2010 at 10:34pm
I'd love to see some webinars on how to take activism to the next level. I think every health community is at a different point along the activism scale and a review of key activist activities would be of great value.

Here's some other thoughts:
- Health Care Reform = what are the key points that Health Activists should understand?
- Raising Awareness in your Health Community - how do you build a strong, active health community?
- Social Media for Health Activists
- Hidden Health Communities - LinkedIn, Facebook, Amazon(!)
- Health Activists and Pharma Companies
- Health Activists and Hospitals, Physicians, and Nurses

By the way, we share similar stories - I was a young adult when I was first diagnosed with cancer. 18 years later, I'm thrilled to be able to meet other hodgkin's survivors through communities like WEGO Health.

I attended the webinar last week. It was fantastic!
Comment by Kerri Sparling | SixUntilMe on March 1, 2010 at 10:56pm
Thanks for your feedback, Alicia!! Very, very helpful, and I'm definitely taking your suggestions into the next brainstorming session!!!

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