Having Dystonia is like having a spoiled child inside of you.

Dystonia, I wish I never heard the word.

It may wake you up even if you are not ready to be woke.It may use a 'quiet voice' to wake you like a child whispering to its mother or it may scream at you as the pain itself shows in your entire body. It could wake you with a rythm, yet the rythm is a off beat spasm from head to toe.

Can I go out today or will the sun lead to a migrane? The child does want to go out and play in the sun and water, yet the parent knows one must restrict the outdoors since you cannot even feel a sun burn and even being inside a migrane begins.

Do I sit here the rest of my life or do I do what?????...........................totally clueless on this journey.

For today, talk to me about feelings not about this type of Dystonia or that type. Today, I want to be me. Me without Dystonia.