I know for me, I:
~ Cook/Bake safe meals/food. There aren't too many safe places that we can go out to eat so I do most of the cooking at home.
~ Plan ahead for parties/holidays/school functions. I don't want my son to feel left out.
~ Plan ahead for vacations. When we are going to a new place, I need to find grocery stores/restaurants that can accommodate our needs.
~ Read labels and keep track of safe foods that he can have and any ingredient changes that may have occurred thus changing a once safe food into an unsafe food.
~ Research the latest food allergy information on the Internet. This is so important. I've learned so much from articles/blogs/message boards that I've read on the Internet and it's also how I find out that some of the food on our safe list actually isn't (although the Dino Bites in question are back on the market and supposed to be gluten free again).
~ Help to educate the newly diagnosed.
~ Try to educate friends and family.
~ Keep track of all medication and expiration dates.
~ Try to advocate for the food allergic.
How do you keep it all together? How do you not fail at your job? Do you ever feel like you are totally overwhelmed by all of this? What techniques do you use for keeping all of your information and time organized when dealing with child's food allergies?
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Tags: allergies, community, food allergies, organization, parents of food allergic children, stress, working together
© 2012 Created by Susan M..
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