Sugery for Dystonia

I saw the Doctor in Long Beach he was very kind and helpful, Know I go to see the specialist on Monday 6:00am I am happy it came so fast, if I get it over with my life and my family life will be better. The Doctor sad this is going to be a painful prosers and I have to do most of the work. I am welling to take it on. I now I can I always bounce back. now matter what I go through. Hay I live with other illnesses that are easier to live with. This surgery is going to Chang my life, I am not going to take making for granted or being able to talk and remember what I am saying or understand what others are saying to me. I well have to learn how to do everything over. The surgery is called DEEP BRIAN STIMULATION. They have to do the surgery as soon as they can they cant lit me suffer, I am in pain sometimes I cry, my hole body twitches and with every twitch my muscles get stuck in the same position it was twitching. I cant wright I am not able to do the day to day things I could of when I was not sick. I don't want to end up in a well chair all my life. I well be strong and Positive.

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Comment by Browneyes27 on July 25, 2009 at 6:36pm: We go to see the Doctor to get the anser to all of the quistions we all have and maybe even some tests. it is a long jrouny a head of me and my family, and all of you how are praying for me. I fell like when I go to see the Doctor you all are with me in my heart. In away you all are my family too, thank you for all of your thoughts and words they make me fell I am not alone. with love and tons of Hugs.

Comment by Ellen S on July 28, 2009 at 9:01pm: Have you read Beka's DBS journey? She's written about it quite a bit here.

As someone who's only read about it, I think that, yes it is a difficult surgery, but I'm looking forward to you updating us and letting us know what your experience is like. Your brave words may help someone else take the steps you're taking and change their own life. I pray that it will be a raging success!!

I was just reading Rev Wagner's post on thriving during the storms, knowing that storms means something quite different for those of us with generalized dystonias. I'm reminded of two things it seems I've written much as of late....

2 Corinthians 12:10 - I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong

and....

Remember it's okay to be a little afraid too. It's not brave if you're not scared.

Comment by Browneyes27 on July 29, 2009 at 11:52am: My Doctor filmed me I had to sing papers so he could video tape. I get prety bad when I am nurves or scard. the Doctor is very kind and nown all over the world. He now every thing about Dystonia. I fell safe with my family around. Me and my mom and sesterinlaw went to gether the ners was very nice as well. It is going to be a long journy for me and my family and friends. I well try to keep you up to date. My mom videoteped some of my journy I well shar it when mom and I are ready. With a beg hug, your friend Browneyes27.

Sugery for Dystonia

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