Noelv's Comments

Comment Wall (6 comments)

At 4:03pm on November 8, 2009, Acquired Torsion Dsystonia said…: I have 'other acquired torsion dystonia of the left posterior tibialis muscle'. this was secondary to post surgical convalesence at a VA hospital. I have gone to 5 neuros, 3 orthos, 1 podiatrist to support the proximate cause of the injury. Despite being assessed to the contrary, i could not non weight bear on my opposing leg which has a congenital defect (i was born without a hip socket). i receive
Botox treatments and this helps straighten my lower leg. i cannot get a doc to connect the dot, despite successful botox treatments. they don't want to go to court.

At 1:56pm on July 29, 2009, Rosemary said…: Hi- Welcome. My Dystonia (Generalized) was slow developing too, and slower to be diagnosed! Mine is now terribly complicated by a failed neck surgery. Sometimes a bit much all the stuff that happens indirectly from Dystonia. Crazy. Good luck keeping your weight up.

At 6:18am on July 11, 2009, joanne said…: Thank you, I will look into that. How are you?

At 11:20am on March 6, 2009, edahl said…: Thank you for the welcome Grace. I bet we have a lot in common since you have cervical dystonia too. I'd love to chat with you about my symptoms and yours. Do my symptoms seem to fit the bill? I think I have dystonia, but the docs don't agreee. After muscles have been in constant spasm for 3 years to varying degrees doesn't that sound like dystonia?

At 11:17am on March 6, 2009, edahl said…: Thank you so much for your encouragement and help. I am so impressed with this website and the extremely intelligent and well informed people that are a part of it. I am learning more in two days than I have in years of research! Thank you!! Thank you also for the compliment on the baby. She gets cuter everyday! Also heavier, so that is a worry for me!

At 10:17am on February 25, 2009, TWISTEDJAM said…: Hi noelv !

I want to welcome you ... ((( WELCOME ))) !

Feel free to knock on doors here ... you will find comfort and friends !

My name is Grace (twistedjam) and I have Cervical Dystonia.

Toronto/Canada

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