My dear sister, I will be praying for you! I'm so glad to meet you. Please check out Andrew Wommacks website. He's given an amazing month of teaching on divine healing & I learned alot of things I was doing wrong as I pray for my healing recovery.It's God will for us to be well. He also has a great DVD about a young woman who had horrific seizures & toxic overload, NIKKI O'Shinsky, who is Healed , recovered and a living testimony! Check it out & feel free to email me. Hugs,angel
Hey Deanna,
I know this is a long time coming. I am so sorry I had not looked at my page sooner. You are right about being a people please-her or him. I think of it this way, we can only give so much. So imagine a beautiful pitcher of water on the table (the pitcher is full...the pitcher full with water represents you), around the pitcher are glasses, some small and some big....well now you need to fill all the glasses (all the glasses represents the people that you have given to each day). After you fill all the glasses you have now given all of yourself to others and you have nothing left for yourself. When this happens (you giving all the water away...the water is a metaphor of you) everyone gets a piece of you EXCEPT YOU!!! This will lead to being angry, sad, mad, alone, and every other emotion that does not feel good. It also leads to you snapping at others even when they didn't deserve it. SO THE BOTTOM LINE: the next time a person wants something from you and YOU KNOW YOU EITHER DON'T WANT TO DO IT, OR CAN'T.....A Great thing to tell them is 'to thank them of thinking of you, but, at this point I have to many things right now and cant take anymore on, but perhaps next time' If you go in a direction like that there will be fewer and fewer glasses to fill (metaphor of people taking to much of you). I find that helps. Also about our hubbies...sometimes they get the brunt of things. There is a great book out there from Dr. Laura Schlessinger, I would pick it as either my favorite or 2nd favorite. The books name is "The Proper Care and Feeding of husbands." I know that sounds strange but it truly does empower woman in the relationship, the reviews on it are wonderful and well worth it. There is also another one called, "The Proper Care and feeding of a relationship." Just thought that might help/reduce stress!!;)
As far as who will get the most of you, of course YOU and then your family,(if you don't take care of yourself, no one else will) if there is nothing left over then we just have to be kind with saying no to things .BY THE WAY YES IT IS HARD THE FIRST TIME TO SAY NO, but it gives you a big release!
Also as you put it, you are an empty nester, it is hard, but now you can make sure you have time for yourself, make a spa date or do a mani/pedi with a friend during the day.
As a woman, we really bring things together in life and our families and that is a large responsibility!!! Take things a step at a time. Also the books by Dr. Laura Schlessinger are great in this area where we can do little things that will help peoples relationships and it truly can change your relationship with your hubbie for the better and reduce stress.
I hope things are going better
hope to hear from you
liz
Thank you for the welcome Deanna! By the way I'm doing great, as my neurologist says "I'm kind of a miracle" but it was a "long" road I had to walk. For 95% I function normal, meaning I need Botox every 4 months. If I can help anyone it would be a huge honer!
Nope, 'bout 7 years ago. (I sent you a message with the details) Would you happen to know how to log on to the forum with the info on Dystonia? That's what hooked me. :)
Thanks for the welcome, Deanna! I havent' joined in any support groups or blogs before, so this is nice... at least good to know that I am not alone. :)
Hi Deanna;
Dystonia is a movement disorder not a disease, if you were to look at your brain there is no sign of disease like parkinson's or huntington's. If they ever come out with a cure for dystonia, your body would go back to normal without the movements, where the other two would still have the damage to their brain even after a cure . Thorns
Hi Deanna,Google myoclonus then you will find NINDS. info there concerning stim-sensitive myoclonus and others. Says researchers spec. that there is an abnormality in the receptors for serotonin and GABA which helps the brain maintain muscle control. Have not heard of staging of myoclonus just diff. forms. Just learning how to blog ect. really neat. Getting carpel tunnel in wrists from typing along with dystonia. But using this computer will open a whole new world. I now know I am one of many dystonians trying to mainain a somewhat norm. life. But boy it's so hard. Sometimes taking a step forward is like treading water at the same time. Have to push and push. I dream of everything I want to accomp. in a day, but then it's only a dream. I wish so much to turn back the clock, 6-12months ago. I have a will that is strong but get fustrated trying to find new ways to do everything. Energy is so precious,must use it wisely. Do you sleep well? There is not enough hours in a day. It takes so much time just to shower and floss my teeth. Very diff. when you have dystonia in hands and mouth. Hair is another prob. Can't lift lft arm
diff to style with one hand. Hair becoming thinner due to Rx. Taking SeptraDS for a couple of bladder infect. Hair is everywhere sad because daughter getting married in Dec. Have been consid. DBS. Trying to find neurosurg to agree. Just had blood drawn for DNA testing to rule out
Dopamine Responsive Dystonia. Results should be back,but Dr. in Italy.
Treated last two years with DRD,GEN.dystonia. But all of a sudden lft shoulder and arm started to contract. If test is Neg. I should be a better candidate for DBS. This is a big decision,don't want to be in a w/chair but afraid of dying during oper. I'm 52,have asthma,and some A.heart disease. I know dystonia can effect my breathing and heartrythm. As for Botox, had injec. in neck every 3 months for last 2 yrs. Cancell last tx. Dr. not happy, one side of face perm drooping compar to other side. Wierd looking wrinkles appearing. Dr. will never use leftover Botox already paid for in wrinkles that he is creating. I feel like an alien @ times. No wonder
dystonians hide from public view. You stated you have some cramping in your feet,prob. due to dystonia. Also medication can cause edema,swelling of ankle area, My feet burn and ache wnen swollen.
Hope I could answer a few of your ques. Take Care.
Nuero started me on gabapentin (nuerotin) 300 mg 1 0r 2 3x's daily. It helps some but I still have problems with my hands and my feet when they are bad forget it! I teach high school we will be done next week then I'm going on the 16th for a little visit and chat w/ my dr. He originally mentioned botox but I declined at this point because @ $500 an injection for something that's not a permanent solution (not that anything is) seemed like a lot. I'm not sure how much longer I'll be able to work because of the pain but one day at a time w/ that. Thanks for asking I hope things get better for you.... I guess we are all still trying to figure this thing out.
We live in metro Richmond. It is the best place to live in the world! I was officially diagnosed in Mat but I have had symptoms/ problems since ~ 2003. My hands are turned inward it make it difficult to write or do fine motor stuff . The other day I told my husband I decided today was the day I was either going break everything or drop it! It was a bad day. My feet feel like every bone in them is broken so some days I can hardly walk!. Anyway what med are you on because I still trying to figure out what works or doesn't work for? Thanks for being a friend and listening.
I truely understand where your coming from about doing work and in pain. Our home in Va has some beautiful gardens. This year I decided to replant in one of the gardens that was getting overgrown. To make a long story short my husband ended up roto tilling the garden for me because after a couple hours of weeding I was so sore I went right to bed and didn't get up until the morning. I was still sore. I use to spend hours weeding and caring for my gardens... not so much now. So frustrating!
I wanted to stop by and thank you for being a friend ! : )
We all need each other on here !
I also want to know if you would like to be on my "twisted" tree on my blog post ( your pic ) ... as one of the many Dystonia warriors ?
Need to ask you for your permission of course !
Hey Deanna! Welcome to WEGO Health! Noticed that you've jumped right in with the groups and making connections. Such a smart idea.
I've recently had surgery and learning to "slow" down and ask for help has been one of the hardest things I've ever had to do; it's not fun and hasn't been easy!
I noticed that you haven't taken our Health Activist quiz yet and wanted to point you in that direction to see what kind of activism most interests you! Clearly by coming to WEGO you've taken the first step in activism and that's great!
If you ever have any questions about what goes on at WEGO Health, let Ellen or I know and we'll be able to help ya out!
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Are you having tremors since you started taking Lyrica?
I know this is a long time coming. I am so sorry I had not looked at my page sooner. You are right about being a people please-her or him. I think of it this way, we can only give so much. So imagine a beautiful pitcher of water on the table (the pitcher is full...the pitcher full with water represents you), around the pitcher are glasses, some small and some big....well now you need to fill all the glasses (all the glasses represents the people that you have given to each day). After you fill all the glasses you have now given all of yourself to others and you have nothing left for yourself. When this happens (you giving all the water away...the water is a metaphor of you) everyone gets a piece of you EXCEPT YOU!!! This will lead to being angry, sad, mad, alone, and every other emotion that does not feel good. It also leads to you snapping at others even when they didn't deserve it.
SO THE BOTTOM LINE: the next time a person wants something from you and YOU KNOW YOU EITHER DON'T WANT TO DO IT, OR CAN'T.....A Great thing to tell them is 'to thank them of thinking of you, but, at this point I have to many things right now and cant take anymore on, but perhaps next time' If you go in a direction like that there will be fewer and fewer glasses to fill (metaphor of people taking to much of you). I find that helps. Also about our hubbies...sometimes they get the brunt of things. There is a great book out there from Dr. Laura Schlessinger, I would pick it as either my favorite or 2nd favorite. The books name is "The Proper Care and Feeding of husbands." I know that sounds strange but it truly does empower woman in the relationship, the reviews on it are wonderful and well worth it. There is also another one called, "The Proper Care and feeding of a relationship." Just thought that might help/reduce stress!!;)
As far as who will get the most of you, of course YOU and then your family,(if you don't take care of yourself, no one else will) if there is nothing left over then we just have to be kind with saying no to things .BY THE WAY YES IT IS HARD THE FIRST TIME TO SAY NO, but it gives you a big release!
Also as you put it, you are an empty nester, it is hard, but now you can make sure you have time for yourself, make a spa date or do a mani/pedi with a friend during the day.
As a woman, we really bring things together in life and our families and that is a large responsibility!!! Take things a step at a time. Also the books by Dr. Laura Schlessinger are great in this area where we can do little things that will help peoples relationships and it truly can change your relationship with your hubbie for the better and reduce stress.
I hope things are going better
hope to hear from you
liz
Dystonia is a movement disorder not a disease, if you were to look at your brain there is no sign of disease like parkinson's or huntington's. If they ever come out with a cure for dystonia, your body would go back to normal without the movements, where the other two would still have the damage to their brain even after a cure . Thorns
diff to style with one hand. Hair becoming thinner due to Rx. Taking SeptraDS for a couple of bladder infect. Hair is everywhere sad because daughter getting married in Dec. Have been consid. DBS. Trying to find neurosurg to agree. Just had blood drawn for DNA testing to rule out
Dopamine Responsive Dystonia. Results should be back,but Dr. in Italy.
Treated last two years with DRD,GEN.dystonia. But all of a sudden lft shoulder and arm started to contract. If test is Neg. I should be a better candidate for DBS. This is a big decision,don't want to be in a w/chair but afraid of dying during oper. I'm 52,have asthma,and some A.heart disease. I know dystonia can effect my breathing and heartrythm. As for Botox, had injec. in neck every 3 months for last 2 yrs. Cancell last tx. Dr. not happy, one side of face perm drooping compar to other side. Wierd looking wrinkles appearing. Dr. will never use leftover Botox already paid for in wrinkles that he is creating. I feel like an alien @ times. No wonder
dystonians hide from public view. You stated you have some cramping in your feet,prob. due to dystonia. Also medication can cause edema,swelling of ankle area, My feet burn and ache wnen swollen.
Hope I could answer a few of your ques. Take Care.
Thanks for climbing the "twisted" tree !
You're on ... look up !
Take care my friend !
Grace
I wanted to stop by and thank you for being a friend ! : )
We all need each other on here !
I also want to know if you would like to be on my "twisted" tree on my blog post ( your pic ) ... as one of the many Dystonia warriors ?
Need to ask you for your permission of course !
Hope you're well !
Take good care and feel free to come knocking !
Grace
I've recently had surgery and learning to "slow" down and ask for help has been one of the hardest things I've ever had to do; it's not fun and hasn't been easy!
I noticed that you haven't taken our Health Activist quiz yet and wanted to point you in that direction to see what kind of activism most interests you! Clearly by coming to WEGO you've taken the first step in activism and that's great!
If you ever have any questions about what goes on at WEGO Health, let Ellen or I know and we'll be able to help ya out!
Be Well,
Sarah
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