I read your post about the neurologist and how he treated you.OMG what is this world coming too. Please try and actively search for a movement specialist that can help you.
The dystonia foundation in Chicago might have some answers for you. Please call them.
They have the names of doctors etc in your area who will understand you. Please try and call them. I was going out of my mind and I called them and they smooth things out for me..Let me know how you are doing...I hear that some doctors are closing shop and going to the Islands because of the White House etc. I am scared myself. If you need me to get the number for you I will. I have some literature around here with their name on it and phone number.Lene
I am looking to communicate with people in Northern New Jersey who suffer from generalized dystonia in any part of their bodies. I would like to know how you handle the tremors and explain to people what you have and how medications have helped you.
I would like to hear from anyone regarding this disease.
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I read your post about the neurologist and how he treated you.OMG what is this world coming too. Please try and actively search for a movement specialist that can help you.
The dystonia foundation in Chicago might have some answers for you. Please call them.
They have the names of doctors etc in your area who will understand you. Please try and call them. I was going out of my mind and I called them and they smooth things out for me..Let me know how you are doing...I hear that some doctors are closing shop and going to the Islands because of the White House etc. I am scared myself. If you need me to get the number for you I will. I have some literature around here with their name on it and phone number.Lene
I would like to hear from anyone regarding this disease.
Thanks
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