hi joanne..sorry it has taken me so long to reply to your comment..i sometimes
forget to check mypage..it is amazing that the internet has opened up a whole new world for us dystonians..bringing to our attention that we're not alone with our battle with dystonia..that there others just like us out there!!
i know that just knowing that has meant alot to me..as has being able to actually connect with others who understand what it's like to go thru what we go thru..there's nothing better than having a friend..or friends to help you thru the rough times..it makes this journey we are all on so much easier!!
i look forward to getting to know you better..karen ;o)
Hi Joanne,
The first few years of having dystonia, I felt were the most difficult. It has a tendency to worsen until you hit a plateau at about 5 years. Did it take a long time for you to be diagnosed or was it right away. I am unsure regarding DBS early in the game. I know Beka Serdans if very knowledgable regarding DBS surgery and is an excellent resource. I would ask her opinion. By the way, welcome to this forum. If you have facebook I am on it. I am under Debbie Graham. Please feel free to add me as a friend. :)
Hi joanne. My neuro at Columbia Presbyterian Hospital where they pioneered a lot of the Botox treatments recommend this neuro in the UK; Khalash Bhatia is at Queens Square in London
How are you doing today? It's always great to see new faces here on WEGO Health! Have you checked out any of our groups yet? It's a great way to participate in on the great discussions already going on.
Also, you should check out the forum. I posted '11 Health Myths' and would love to know what you think!
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forget to check mypage..it is amazing that the internet has opened up a whole new world for us dystonians..bringing to our attention that we're not alone with our battle with dystonia..that there others just like us out there!!
i know that just knowing that has meant alot to me..as has being able to actually connect with others who understand what it's like to go thru what we go thru..there's nothing better than having a friend..or friends to help you thru the rough times..it makes this journey we are all on so much easier!!
i look forward to getting to know you better..karen ;o)
The first few years of having dystonia, I felt were the most difficult. It has a tendency to worsen until you hit a plateau at about 5 years. Did it take a long time for you to be diagnosed or was it right away. I am unsure regarding DBS early in the game. I know Beka Serdans if very knowledgable regarding DBS surgery and is an excellent resource. I would ask her opinion. By the way, welcome to this forum. If you have facebook I am on it. I am under Debbie Graham. Please feel free to add me as a friend. :)
How are you doing today? It's always great to see new faces here on WEGO Health! Have you checked out any of our groups yet? It's a great way to participate in on the great discussions already going on.
Also, you should check out the forum. I posted '11 Health Myths' and would love to know what you think!
Lastly, you should take the 'What Type of Health Activist Are You?' Quiz. It's a great way to see where you fit into the community.
Let me know if you have any questions, and once again--WELCOME!
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