Lene's Comments

Comment Wall (39 comments)

At 7:37pm on November 6, 2009, Divan said…: Thanks so much for connecting with me... I live in Brazil and my english is not so good. I have a difficult to typing because the desease. The writer's cramp developed and committed to others functions as typing. I don't get to use the mouse and type with my right hand.

At 9:16pm on October 30, 2009, A. James Hillelson (Jim) said…: Good Evening, Lene! Thanks so much for connecting with me on my first day and in becoming 'friends.' I don't much of anything about Dystonia, but now I will learn. And, perhaps in doing so be of service to someone along the way.

I look forward to getting to know you better and being of whatever support that I may be. Never hesitate, my new friend. Do stay in touch!

Many Blessings!

At 8:47pm on October 24, 2009, JOSE GARCIA said…: I have been Licensed in Acupuncture over 20 yrs.. I have found it to be inconsistent in treating Dystonia. However, I am academic and western trained. I have been to traditional Acupuncturists without any success.

Like everything in Dystonia, some treatments help some but not others. I have done Acup. on myself, a little uncomfortable, but at times I have noticed some decrease in pain and muscle spasm. Unfortunately for short periods of time. I seem to get better results when I needle myself.

You can give Acupuncture a try. It's safe. (as long as they know what they are doing) worse that can happen is that nothing happens. Again whomever you go to needs to be licensed and qualified.

This information is my personal opinion. I am pretty sure I am not licensed in your state.

Best Jose

At 8:08pm on October 2, 2009, beka said…: Hi Lene - May be you can help answer why when you and others post , dont get an immediate reply. I wish I could be on the computer all day but cant be - just like now, am answering from work...am just bothered that so many of you feel lost and isolated...and feel like you arent being heard...?
beka ( at work..)

At 11:21am on September 25, 2009, TENA/DIAMOND said…: THANK YOU SO MUCH FOR BECOMING MY FRIEND. I WISH TO LEARN MORE ABOUT THIS DISEASE!!! SOMETHING I RARELY HEARD ABOUT , IS NOW BECOMING TOO FAMILIAR. THIS I FIND FRIGHTENING! HOPE YOU DON'T MIND LENE, IF I USE SOME OF YOUR INFORMATION TO TEACH OTHERS OF THIS DISEASE , AS I LEARN ALSO. IF SO, JUST LET ME KNOW.. OK

YOURS DEARLY

TENA/DIAMOND

At 2:55pm on August 14, 2009, Ellen S said…: Hi Lene, trying to add your new Twitter but it doesn't seem to like it. Can you add me and I'll follow you back??? ESchnak

At 8:48pm on August 13, 2009, Rosemary said…: Hi Lene: I don't twitter but thanks for the invite. Hope you are having a good day. Check out NPR (National Public Radio) radio for a better balance of news coverage on health care and otherwise. Great programming.

At 11:27pm on August 8, 2009, toots said…: Hi Eileene, Thanks for your comment on my pic. It was taken the night of my 40th class reunion. The first one I've attennded since graduating. What a blast I had. Probably a little boring for Tom but he found people to talk too. My best freind from childhood was there from Maine and we hhad fun talking about our childhood and whatever. She was also my Maid of Honor at our wedding 40 years ago. Oh my where does the time go? Love ya, Sheilla

At 12:35am on July 23, 2009, Jessica said…: Hi Lene !

Thanks for inviting me to be your friend. Wow! your page looks very beautiful.

At 10:53pm on March 15, 2009, TWISTEDJAM said…: Hi Lene !

Hope all is well with you and you had a pleasant weekend !

I wanted to let you know that I just deactivated my account with Facebook ... don't really care for it too much !
I find there is far too much of everything !
I guess it's great for some people but I don't really feel a use for it ...
not at this moment in my life anyway.
Perhaps one day I'll return to it and if you are still on I'll add you on again !

There is just so many other things right now that I should really be concentrating on.

In the meantime I'll keep in touch as always here.

Take care

Grace : )

At 12:22am on February 27, 2009, TWISTEDJAM said…: I'm glad to hear that you got the medical attention that you needed !
And I do hope that your pain has subsided or even better ... gone !

I do have problems with my spine as well and perhaps think it wise to go consult with my doctor as I can't stand this pain anymore !

Take care Lene

Grace

At 11:01pm on February 25, 2009, TWISTEDJAM said…: Hi Lene !

Thinking of you and I hope your appointment went well.
I hope you got the answers that you were looking for as well !

Take care

Grace

At 9:31am on February 17, 2009, imambaba said…: hi
thanks lot for your reply..i am very happy to have your valuable support..i need help regarding medical writing,,i am in entry level please help me how i start the career.. now i am doing one medical writing course...

At 8:57pm on February 2, 2009, lissamel said…: Thank you so much - being new to the dystonia world it has helped to find a place to belong, find information and share ones thoughts and feelings.

Mellissa~

At 1:01pm on January 27, 2009, TWISTEDJAM said…: Hi Lene !

Thanks so very much for commenting on my blog and your kind words. It makes me feel good to know that through my blogs I can perhaps touch one's soul if not through words than through my art.

Through this most recent blog I was trying as best as I can to capture the "feeling" of Dystonia !

I'm trying as best as I can as well ... to spread "awareness" in my own little way !

How is your singing voice ?

Hope you are doing well.

I thought I would place your pic on the very top of the tree on my other pic ... it's the perfect spot !

Take care Lene

Grace/Toronto

At 9:30pm on December 25, 2008, robert said…: Hi Lene,

I tried to add you as a friend on MySpace but it didn't seem to work. Comnputers would drive you mad lol.

With regard to dystonia international it is always useful to have those who will take the time to answer questions , especially from new members.

It is easy to join, just go to the website and follow the instructions

http://groups.yahoo.com/group/Dystonia-International/summary

Unlike Wego our group is closed ie, the posts cannot be googled and anything you write is confidential to the group.

Best!

Robert

At 2:06pm on December 25, 2008, imambaba said…: hello
i am new to medicla writing field, i need some guidance,will you please help me regarding this,,,,?
regards
imambaba
india

At 8:12pm on December 24, 2008, freida may said…: Thanks Lene for the Holiday Wishes. I hope you and yours have a wonderful and Blessed Christmas and New Year.

At 10:59pm on December 22, 2008, TWISTEDJAM said…: Thanks for stopping by Lene !