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Thank you for such a lovely welcome to WEGO.
I am involved with Alzheimer's Australia andon some of their committees etc.
Our DASNI quilts were a wonderful project with squares from all around the world contributed by people with dementia or in memory of some who have passed on.
They now hang on the walls of some Alzheimer's Associations to remind people that those of us with dementia can still do lovely things.
I would love to get to know more of the people on this site as well.
Again, thanks for your welcome
Warmest regards
Shirl
Thanks for sharing your comments about how cancer has touched your life. I will take your advice and join the cancer board. I can certainly use some support in that area of my life. It has devastated me and I know it has created a lot of stress for me in dealing with my dystonia.
sisdailey
It is so nice to meet you and I'm glad you joined WEGO Health. You have an awful lot to share with our dystonia community. I have a personal interest in Cancer. I have lost all my immediate family to Cancer and am the only one left. At times I ask my self why? For now I know I could not control what happened and have to accept it. That can be a hard thing to deal with. Presently I am taking it one day at a time. It can be a very lonely feeling. I do have my own family and one of the things I fear the most is losing one of them.
Anyway Paula I am glad you are here.
Sisdailey
How can we get more people involved ?? Thanks for being involved yourself !
beka
infoc4d@aol.com
Talk to you later...Nancy
I wanted let You know that size does matter on the profile pics. Thanks so much for Your help on this ;)
Robin
GGMel
Many thanks for leaving your very nice message. I'm not often on the Dystonia Bulletin Boards but would be happy to be there to share more of my life with others if that would help in even a small way.
I'm pleased to note that you found the You Tube informative. I've been an advocate of promoting Generalised Dystonia so that people can at least have some idea of what it involves and that it's not just some obscure breakaway Russian Republic.
Paddy
You certainly have a lot of interests and I've no doubt that this keeps you very busy.
I'm a writer and have worked as many things in my life before retiring so that I could give more attention to writing and to other things. I've worked as many things, a few being, a laboratory technician, a scriptwriter for children's TV, I've worked with young offenders and have also worked with 'battered women'. I'm heavily involved in highlighting the issue of the physical, sexual, psychological and emotional abuse of children. My book, The God Squad, has been translated into many languages and is available online as well as in many good bookstores. Most people find it and buy it on www.amazon.com or www.barnesandnoble.com .
I am described very often as a 'disability activist' and have Generalised Dystonia. You might like to have a look at my website www.paddydoyle.com and my video on both You Tube and on my website. The You Tube video can be seen here:
http://ie.youtube.com/user/paddydoyle51 One of my missions in life if you like, is to ensure that Generalised Dystonia becomes better know and better understood. There's little of no information on the disability on the WWW or on the various dystonia sites.
Hope your day goes well.
~Michelle
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