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Profile
- About me
- I have Fibromyalgia and have spent some years researching the condition. My blog, Living With Fibromyalgia, is now a source of news and research related to Fibromyalgia rather than a personal diary. I am setting up a new UK Association for Fibromyalgia Awareness called FibroAction. I am also involved with the PolkaDotGals Calendar Campaign for Fibromyalgia Awareness.
- My motivations for joining WEGO Health
- To raise awareness about a particular condition, To expand my professional community, To connect with other leaders in my condition-specific community, To connect with other Opinion Leaders in the health community, To have access to WEGO Health's professional seminars
- My favorite message board/online group
- cafechronique.ning.com/
- My primary personal website
- http://www.fibroaction.org
- Second personal website
- http://linzworld.wordpress.com
- Blog 1 I recommend
- http://www.fightingfatigue.org
- Blog 2 I recommend
- http://www.howtocopewithpain.org/blog/
- Health care resource 1 I recommend
- www.pubmed.org
- Nonprofit or other organization 1 I recommend
- National Fibromyalgia Association (US)
© 2008 Created by Adrienne
Comment Wall (4 comments)
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Glad to have you aboard!! Fibro is such a misunderstood, or maybe I should say non-understood disorder, it's frustrating. I'm glad you're here to help us make some sense of it all. I loved reading your blog and the way you have included relevant articles that are beyond the scope of normal fibro elementary talk. I'm just learning about this myself. Our threads are a bit scattered right now, but I'm hoping we can change that soon. We're just getting started with the topic, and sometimes baby steps are the best way to reach a destination! I look forward to learning a lot thru you!
Ellen Schnakenberg
WEGO Health
Community Moderator
Headache and Migraine